Patients who are living with Turner Syndrome face a number of challenges in successfully managing their disease—and transitioning from a pediatric to a new adult doctor can be yet another obstacle. A variety of resources have been developed to help the care team prepare for and successfully manage this transition.
- Toolkit Overview
This guide provides an overview of the Turner Syndrome transitions toolkit including how these resources were developed and how they are intended to be used.
- Provider Assessment of Patient Skill Set
This tool helps pediatricians to assess a young adult’s knowledge and skills regarding Turner Syndrome and its management in preparation for his/her transition to adult care providers.
- Transition Readiness Assessment
This is an assessment tool for adult care providers to identify gaps in self-care knowledge and skills, and to discuss any of these issues with their patients to ensure optimal management of their medical condition.
- Clinical Summary & Transfer Record
This form ensures that all essential clinical information related to the patient’s condition is included in his/her medical record upon transfer to adult practice. It must be completed by the referring provider and patient.
- Dosing Standards for Estrogen
This guide provides both pediatric and adult providers an overview of dosing strategies for patients with Turner Syndrome.
- Recommended Approach for Transitioning into Adult Practice
This resource provides a guideline for adult providers who plan to receive emerging adults with Turner Syndrome.
- Recommended Approach for Planning for Pediatric Practices
This resources provides a guideline for pediatricians who are preparing to transition their young adult patients with Turner Syndrome to an adult provider.
- Adult Care Recommendations for Screening & Assessment
This chart informs patients about which provider should be responsible for conducting various screenings and other assessments needed in adulthood.